Why does this website exist?
The purpose of this website is to provide educational information on the complex condition of Bertolotti’s syndrome (BS). The information included here is based on published clinical research. These are included in the “Latest research” section. This page will be kept up-to-date, to the best extent possible, with the most relevant publications and medical resources that are out there.
We will also include stories from patients that have gone through the arduous process of diagnosis, treatment, and recovery as well as those who are at different stages of this journey.
What is the long term goal of BS Society?
The long term goal for BS Society is listed below. These are listed based on the feasibility and implementation timeline:
Create a comprehensive resource for people dealing with Bertolotti’s syndrome or for individuals looking to educate themselves on this condition
Provide a support network for those dealing with BS through learning about other BS patient stories. We aim to also create an online community in conjunction with Bertolotti’s Syndrome Education Group (USA)
(Stretch goal) Create a patient advocacy group aimed at expanding awareness of this condition
(Stretch goal) Collaborate with specialists and imaging across the US to provide affordable access to diagnostic imaging and diagnosis for patients who cannot afford them
Meet the Team
At this moment, this is a one man operation:
Matyas Abel Tsegaye, PhD (Creator and website manager)
If you would like to help me make this website into the best version it can be, please reach out using our contact page.
“Knowledge is the key to empowerment for those navigating Bertolotti's Syndrome. Your story is just beginning, and this website can be a valuable resource on this journey.”
- Founder of BSS